Posted by: goodmum | August 1, 2008

Sigh.

Out Of Sync Child Revised EditionI need your advice, blogiverse members. I’ve been steaming about something since we got Little Man’s diagnosis with Sensory Processing Disorder and I’m not sure whether I’m pissed off validly or if I should just let it go.

You see, I’m a researcher by nature. Give me a little taste of something, a touch of curiosity about it, and I’m hooked. I’ll be here, online, googling until my eyes cross, ordering books until I order enough to get free shipping. The reason I’m telling you this is because when I first suspected that something was up with Little Man, I went into Researcher mode.

I keyed in searches like “my boy won’t eat with other people,” and “child is afraid of loud, unexpected noises,” and “why the FECK won’t my kid sleep through the  night child wakes multiple times throughout night.” Finally, I came upon some websites that were helpful and some books that seemed like they might be written about other kids who were like my Little Man.

The Out-Of-Sync-Child, by Carol Stock Kranowitz, has become like a bible to me. It’s my go-to book. It’s what convinced me that I needed to push harder with our doctor and look further into this whole SPD world. I read others, such as, Sensational Kids, by Lucy Miller, The Sensory Sensitive Child, by Karen Smith and Karen Gouze, and Too Loud, Too Bright, Too Fast, Too Tight, by Sharon Heller.

So here’s what I’m pissed about: When we got Little Man’s diagnosis confirmed (because, let’s face it, I already knew he had it), I asked Hubby to read just one of the books. One. Not two. Not three. Certainly not all four. One. I even said that really, all he needed to read was the parts I had circled, checked or highlighted.

It’s been over a month now. Well over a month. He hasn’t picked up the book. Not once. And I wouldn’t (I don’t think) have a problem with this if there weren’t so many obvious reasons for Hubby TO read the book. He shouts (rarely, mind you, but…) at Little Man sometimes and I see LM’s shoulders raise in terror. He repeats himself over and over when he’s trying to get Little Man’s attention and doesn’t give LM a chance to process what he’s heard and needs to respond to. If Hubby would read the book, he’d know that Little Man sometimes just needs a few moments to process all of the incoming sensory stuff. Etcetera.

So give it to me straight, people. Would you be pissed too? Do I have a right to be pissed or even a little miffed? Actually, scratch the miffed bit. I’ve never been miffed in my life. I’m either ok or I’m completely pissed. There is no miff in my life. Oh, did that just sound kinky?

Kia

UPDATE!!! Hubby is now in the living room, reading the book. I guess my earlier tantrum has worked. Somewhat. BUT! BUT! Why does it always have to come to that? Why must I stamp my feet and bellow a few roars to get anything done around here? Ugh. That’s another post entirely…


Responses

  1. thanks for stopping by my blog :)
    i really think guys are wired differently. i remember being upset when my husband wouldn’t read any of the baby books i had with my first pregnancy (i even bought one just for dads to read!) i don’t think it’s lack of love, or interest – it’s just that they were born with attention spans of a freaking flea (no insult meant to fleas). sorry this is causing you grief.

  2. Yes dear, you have a right to be pissed off. It appears that he’s not taking LM’s dx seriously or isn’t being considerate of LM’s issues. I think it’s time for a sit down talk with the hubster. Show him the books you read, show him how best to approach LM’s issues. Work together as a team.
    I’m seperated from my little guy’s dad. We stayed together 2 years after the boy was born. It was hard, he was clueless from the get-go. I did the reading, researching, applying, comprehending for the both of us before and after the seperation. Now that the little guy is 8 going on 9, both of us are okay with A in our respective homes.
    Dad’s process things with their little kids differently. They either want to fix it or are in denial about it. Perhaps LM’s dad isn’t ready to accept there are some challenges with LM’s life.
    This is long enough….you can email me if you like.

  3. I have been facing a similar issue with my husband. Our littlest was diagnosed with severe corn and egg allergies back in APRIL, and yet he still has not read one page of the “ingredients to avoid” papers I have on the fridge. If he is left alone with her (which isn’t often, because I’m actually kind of scared about it) he doesn’t read food labels. He ASSUMES. Nearly every time he feeds her and I’m not around, she ends up eating something she can’t have. I was PISSED. I mean, why am I the ONLY ONE dealing with this?

    I stewed about it a good long time, believe me. And then I blubbered the whole thing to my best friend, and she helped me change my perspective. She said, he just goes about things differently and that he is probably avoiding the whole issue not because he doesn’t care, but because he feels like he wouldn’t be able to comprehend it the way I do. And rather than expect him to go to the lengths I went to (and yes that includes reading ONE PIECE OF PAPER), I needed to break a few things down for him, like Clifs Notes.

    So now, when I get home from the store I write “YES” or “NO” on all of our food. On the milk (because he will accidentally give her nonfat) I write who it’s for. Everyone in the family now has their own shelf, rather than keeping things the way I used to (believe me that was a hard one for me – I like things in their place). And you know what? He thanked me so much for doing that.

    So, make the man some clifs notes. Put them on index cards or something, and spiral them together. If he’s anything like my husband, he’s not going to want to do any in-depth research, read any book, or feel like he’s got to learn a whole lot of stuff. NOT because they love any less, but because they are just… different.

  4. Meanie, I too bought one of those dads’ books when I was pg. The binding has never been stretched, never mind broken!

    Laura, thanks for sharing your story with me. I’m sorry that your marriage didn’t make it, but happy to hear that you and your son’s dad are both making the best of it. It takes such strong people to do that!

    Andrea, i LOVE your YES and NO labels. Perfect!!! Perfectly SIMPLE! ;-)

  5. You are totally justified. BUT…and there’s ALWAYS a but, right?

    To read the book means to admit that MAYBE he has to accept the fact that his son has SPD…if he doesn’t read it, he doesn’t admit it. Not only that, but men are just different than women.

    YOU are the one who has to deal with LM’s idiosyncrocies…hubby is at work during the day. If he is anything like MY hubby, out of sight is SO out of mind.

    You are right to be pissed. I would be too. But know that you are not alone. Again, I say that my kids don’t have any “issues” knock on wood, but Joe could give a rat’s ass about the “hard” stuff. It’s a guy thing.

    HUGS.

  6. I’d be irritated too but I’m not surprised. Katie communicates with sign language and I spent years going to classes to learn ASL. It also took me years to convince my husband to take a class, I think he took two classes altogether. This is how our daughter communicates.

    Hopefully your husband will be able to understand and have some empathy for your son.

  7. You absolutely have the right to be pissed.

    And I would never by the “boys will be boys” argument, either. Guys ignore it because they think it’s women’s work, plain and simple. Men can manage teh minutest details of their electronics equipment, plan empires and wars, design cannons, nuclear bombs, spaceships, write books, conduct symphonies, run companies and countries, and master entire fields of academic data–but as soon as it has to do with a house or a family, they don’t, because they think it’s not their job.

    Which is why I did get pissed about it.

  8. My husband won’t read books either. He just won’t. But he will listen ad nauseum to me explain things and even read stuff out loud to him. He’ll read blog posts I forward him, or short highlighted sections of a book – but not a whole book.

    It’s more important to me that he hears it from the “experts” than actually reads the book himself – so I read (and like you, I’m a big researcher) the books and then summarize for him. I’ve even written him book reports. LOL. Hey, it works.

    So, I suppose you could be pissed, or you could figure out another way to get him the information. :)

  9. Dear Kia, et al.,

    Knowing that my book has helped your LM gladdens my heart. I hope that once your husband begins to read, he will get … shall we say … in sync! So often, Dads and mothers and in-laws and teachers and neighbors, etc., etc., just don’t get it. I think the frustration you feel because they don’t (or can’t) try to learn about SPD is legitimate. Of course, you are pissed!

    Go to http://www.SIFocus.com and order a back issue of this splendid magazine with an article called “Getting Fathers Involved in the Lives of Their Children with SPD,” by Chris Auer. It is in “S.I. Focus” magazine, Autumn 2007. Chris has also written an excellent book, “Parenting a Child with SPD: A Family Guide to Understanding and Supporting Your Sensory Sensitive Child.” Go to http://www.SensoryResources.com for more good materials. Go to my website, http://www.out-of-sync-child.com for more articles on SPD.

    I love Andrea’s Cliff Notes idea. I’m editor-in-chief of “S.I. Focus.” The publisher, Kathleen Morris, and I are always on the lookout for potential articles. Would you like to explore the idea of writing an article for the magazine? “Cliff Notes for the Please-Stop-Nagging-Me-It’s-Too-Much-to-Absorb Dad,” kind of thing.

    Best wishes to you all,

    Carol Kranowitz

  10. Dawn’s words are wise. My Husband wouldn’t admit to any issues at all until we’d been home over four months. Something was SERIOUSLY wrong with our little Tongginator, but he couldn’t accept it. He was also at work all day. I still remember his facial expression when he plopped down our Tongginator on the grass while she was wearing cropped pants instead of long pants. That was the day he accepted that we faced extra challenges. (The feel of the grass, you see…)

    Give your husband some time and as much patience as you can muster. Some people dive head first into accepting a problem. Some people spend lots of time and energy living in denial before it finally catches up with them. It sounds like he’s trying now… that says a lot, doesn’t it? :)

    Having said what I’m “supposed” to say, just know that I also felt at my wit’s end during this time for me. I cried a lot and felt so, so isolated. So do what I say, not what I do… LOL.

  11. Dawn,you’re right; admitting there was a real problem was hard for hubby. Funny though: now that he started reading OOSC (OUt of Sync child), he says he thinks he had/has SPD. Surprise, surprise! hahaha

    Deb, I’m sorry but I can’t believe your ex only took 2 classes when that’s the way Katie communicates. Unreal!

    Andrea, I’m not sure if Hubby thinks it’s MY job, per se, but I think he just trusts me entirely too much to know everything there is to know about Little Man. I think if anything he’s just lazy and figures ah well, Kia will do all the research. Laziness. Yeah. Ahem..

    Good Fountain, I think you’re a better woman than I! ;) I will do a lot to help Hubby understand SPD better, but I don’t think I’ll write a “book report. ” ;)

    Carol, call me. Let’s talk. :) Seriously though, I’m so flattered that you’ve taken the time to read my blog and to comment and even offer me a chance to write something for your magazine. Honored and flattered. Thank you thank you thank you!!

    Tonggu, you’re right. Dawn’s right, too. I think Hubby was so determined to think that there was nothing wrong and that our kid was just “quirky,” that he managed to be blind to what was right before his eyes. I guess that’s their way of coping maybe, huh? And I’m so sorry to hear that you cried a lot and felt isolated. Please, from now on, if you need to talk about anything SPD-wise or otherwise, contact me. I’ve got big ears. ;) No, not really.

  12. Excellent advice – my husband is so not a reader and in the two years or so since we first started suspecting something was going on with my daughter I’ve realized I have to provide him with a “cliffs notes” version of anything I feel he needs to know.

    He has gotten better but still won’t read a book. I am going to have to check out the back issue that Carol Stock Kranowitz mentioned.

    And yes how cool that she posted on your blog! :D

  13. It’s simple – he doesn’t want there to be a problem. So he avoids it. I know because we’ve got one of those here as well.

    Good luck.

  14. Wow, how cool that Carol Kranowitz wrote you! She is like my hero, right up there with Lucy Jane Miller (who I actually met and spoke to at a conference. I actually started crying while talking to her, but that’s another story.)

    Oh, I so feel your pain. I think this is actually common. My sister has an adopted son with SPD and her hubby and mine are so similar. It took me MONTHS just to convince my dh that there was something awry with Danny. He kept insisting that Danny was smart, not retarded, etc, which of course was not what I suspected, but I think men just automatically think retardation or some such when you say something is wrong with the kids. I think he actually couldn’t face that something could be wrong with HIS boy. Somehow maybe it was personal.

    The turning point for us was when Danny was diagnosed and my dh saw that it wasn’t as horrible as it could be. He helped with therapy, etc. but what happened after the diagnosis really helped. I was supposed to take Danny to therapy in Chicago (3 hours away) at the beginning of Dec for his first therapy session. But, instead I had my daughter almost a month early, so Bil had to take Danny to therapy. It scared me because I like to be in control, but in this case, I had no choice. That was the best thing because Bil could talk to the therapist himself and really helped him get involved.

    Now, that’s not to say that he would sit and read an SPD book. Instead, I do ALL the research and break it down for him in Cliff Note’s fashion. I basically take charge of all the therapy stuff and periodically have a break down where I scream hysterically that I cannot do it all alone. Then, Bil picks up some slack . So far that system is working for us.

  15. LOL, maybe I should try a tantrum — my dh never reads any of the books I bring home, though he will read articles I email him. Glad to know it worked for you! That book was a huge help to us initially, and it’s one I’ll never let go of.

  16. [...] rules of blog etiquette, I visited Kia’s blog.  I saw that Kia had made a post called “Sigh” in which Carol Stock Kranowitz, the author of The Out-of-Sync Child posted a comment.  [...]

  17. This book is a bible for me as well. I’m not sure if you’ve read it, but one I currently am loving is “The Difficult Child” by Stanley Turecki.

    Thank-you for stopping by my blog! I’ve been away for most of August biut will continue updating it. Expect me to me checking in on yours now as well! Some great information here.


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